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Thursday, December 30, 2010

Jonah's EB Auction

**I am trying to help out with an amazing little boy and his family by spreading the word about this auction.**
Matt and Patrice Williams and their little boy Jonah live here in Winston-Salem. Jonah was born with a very rare genetic skin disorder called Junctional Epidermolysis Bullosa which causes his skin to slough off and blister all over. He was not expected to live even to his first birthday but this little miracle boy will celebrate his second birthday in February!

In the hopes of someday finding a cure for EB, the Williams family has decided to hold their second annual auction. Jonah’s EB Auction will raise money to help support DebRA in funding their research on EB.

The auction will run from Thursday, February 24th at 8:00 pm to Sunday, February 27th (Jonah's birthday) at 8:00 pm.

You can donate new, bought items, handmade items, or gift cards/certificates to be auctioned off. You may also consider making a monetary donation that will first help with the shipping costs of sending the auctioned items to the winners and the rest will go directly to DebRA.

If you are interested in donating items or money please email me, Ashlea Speer, at awspeer7(at)gmail(dot)com or call me at (336)425-2654,


you can email Katie at jonahsebauction(at)gmail(dot)com, and she will get back with you. They need to know what you'd like to donate and the value of the item. Katie will let you know the details from there.

**Visit jonahsebauction.blogspot.com to learn more about the auction!

**Visit patriceandmattwilliams.blogspot.com to learn more about this amazing little boy and his family!

**Visit Debra.org to learn more about EB!

“Epidermolysis Bullosa (EB) is a rare genetic skin disease that causes the skin to be so fragile that the slightest friction can cause severe blistering–inside and outside the body. Today there is no cure. Severe forms of EB cause patients to live with constant pain and scarring. The worst forms of EB lead to eventual disfigurement, disability, and often early death.”